Myeloma Patients Europe
Myeloma Patients Europe (MPE) is an organization uniting 53 local and national patient support organizations across 33 countries. Its mission is to provide education, information, and support to member groups, and to advocate for research and equal access to treatment and care at European, national, and local levels. MPE focuses on improving patient outcomes through strategic programs in education, access, and research, and collaborates on European-wide projects to support patient advocacy and treatment development. It also works with member organizations across Europe, including Ireland, Iceland, Israel, Latvia, Lithuania, Macedonia, the Netherlands, Norway, Poland, Portugal, Romania, Russia, Serbia, Slovakia, Slovenia, Spain, Sweden, Switzerland, Turkey, and the United Kingdom, as well as associate members from Canada, Czech Republic, Hungary, Italy, and Portugal.
Industries
Nr. of Employees
small (1-50)
Myeloma Patients Europe
Brussels, Brussels Hoofdstedelijk Gewest, Belgium, Europe
Products
Myeloma Patients Guide (PDF)
A downloadable patient guide covering diagnosis, treatments, and living with myeloma.
Myeloma Diagnosis Pathway (PDF)
A clinical pathway summarising key signs, symptoms and primary care tests to support earlier diagnosis of myeloma.
Clinical trial access analytics report (CEE Access report)
A published analytics report on the distribution of myeloma clinical trials in Central and Eastern Europe with recommendations to improve access.
Report: Patient perspective on PROs in CAR-T clinical trials
A report presenting qualitative findings and recommendations on the use of patient-reported outcomes in CAR-T clinical trials.
Year in Review reports
Annual reports summarising organisational activities, projects and outputs.
Myeloma Patients Guide (PDF)
A downloadable patient guide covering diagnosis, treatments, and living with myeloma.
Myeloma Diagnosis Pathway (PDF)
A clinical pathway summarising key signs, symptoms and primary care tests to support earlier diagnosis of myeloma.
Clinical trial access analytics report (CEE Access report)
A published analytics report on the distribution of myeloma clinical trials in Central and Eastern Europe with recommendations to improve access.
Report: Patient perspective on PROs in CAR-T clinical trials
A report presenting qualitative findings and recommendations on the use of patient-reported outcomes in CAR-T clinical trials.
Year in Review reports
Annual reports summarising organisational activities, projects and outputs.
Services
A web-based search service that lets patients locate and review clinical trials for myeloma and related conditions across Europe.
Online platform providing country-specific data on health system performance and access to treatment, with coaching to support advocacy strategies.
A structured, cohort-based training programme covering clinical research basics, access mechanisms, stakeholder engagement and evidence-based advocacy skills.
Production and distribution of webinars, video interviews, factsheets, Q&As and downloadable patient guides on diagnosis, treatments and living with disease.
Design and delivery of research projects and analytics (surveys, qualitative interviews, clinical trial analytics) with published reports and recommendations.
Coordination and support services for a network of national, local and associate patient organisations across multiple countries, including membership administration, resource sharing and country-level liaison.
A web-based search service that lets patients locate and review clinical trials for myeloma and related conditions across Europe.
Online platform providing country-specific data on health system performance and access to treatment, with coaching to support advocacy strategies.
A structured, cohort-based training programme covering clinical research basics, access mechanisms, stakeholder engagement and evidence-based advocacy skills.
Production and distribution of webinars, video interviews, factsheets, Q&As and downloadable patient guides on diagnosis, treatments and living with disease.
Design and delivery of research projects and analytics (surveys, qualitative interviews, clinical trial analytics) with published reports and recommendations.
Coordination and support services for a network of national, local and associate patient organisations across multiple countries, including membership administration, resource sharing and country-level liaison.
Expertise Areas
- Clinical trial access and navigation
- Health system access analytics and policy
- Patient-centered research and patient-reported outcome (PRO) analysis
- Patient education and digital health communication
Key Technologies
- Clinical trial database and search platforms
- Health system comparative analytics
- Patient-reported outcome (PRO) measures and analysis
- Qualitative research methods (surveys, interviews, focus groups)