Hemophilia Outreach Center

Dental care coordinated with hematology to plan safe dental care and procedures for patients with bleeding risks.

Round-the-clock phone access to clinical providers for urgent questions, bleed management, and medication requests.

Remote clinical consultations via telemedicine platform to provide access to specialty care at a distance.

A provider portal and referral pathway to accept and coordinate referrals from external clinicians.

Support for clinical trial enrollment and participation related to bleeding-disorder therapeutics and interventions.

Production and distribution of educational content including a podcast series and blog posts to inform patients, families, and providers about bleeding-disorder care and advocacy.

Guidance on insurance plan selection, prior authorizations, manufacturer assistance program navigation, and billing questions related to specialty therapies.

Assistance with legislative and facility-level advocacy efforts, including distribution of toolkits and education materials for providers and families to improve equitable access.

Coordination of summer camps and mentorship events that provide education, social support, and skills training (including self-infusion practices) for children and adolescents with bleeding disorders.

Evaluation and coordination of treatments for Hereditary Hemorrhagic Telangiectasia including outpatient laser therapy, embolization referral coordination, topical and systemic antifibrinolytics, and targeted systemic therapies.